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Re: Standards for Aggregated Data Definitions (Element and Indicators) in Health

 

Hi All

For Data Elements:
As far as I can understand DHIS2 makes use of SDMX cube model (
http://www.w3.org/2011/gld/wiki/Data_Cube_Vocabulary)

For Indicators:
There isn't much standardization although WHO developed a tool that
references components of SDMX (
http://apps.who.int/gho/indicatorregistry/App_Main/view_indicator.aspx?iid=3326
)

For Data Sets:
I see [Dublin Core] are referred to for data set (meta data) specifications.

I'll try get hold of Patrick Whitaker - he seems to be a domain specialist.
Everything points to SDMX and ISO/TS 17369:2005.

Regards,
Greg



On Wed, Apr 9, 2014 at 10:41 PM, greg.rowles@xxxxxxxxx <
greg.rowles@xxxxxxxxx> wrote:

> Hi Everyone
>
> We're in the process of developing a design spec for a (master)
> data-dictionary that caters for the many variations of datasets we have
> here in South Africa. I've been challenged on my claim that there are no
> 'data standards' around aggregated data elements or indicator definitions
> in our space. Jason suggested I put this forward to the DHIS2 community...
>
> I cannot find anything useful. Everything is focused on standardization &
> interoperability at patient-level. HL7, LOINC, SNOWMED, ICD10 are all down
> a level on aggregated data. Does anyone have any articles or reference
> material on the issue?
>
> For over a decade now HISP-SA has been the proud custodian of SA's
> (unofficial) MFL + (official) NIDS - in the hands of Calle. Now that we are
> moving to DHIS2, with an expanded National Indicator Data Set, we also need
> to start managing a Master[Facility]List at OU5, a M[Ward]L at OU6,
> a M[Environmental-Health-Services]L at OU5, a M[School-Health-Services]L at
> OU5, a M[Reporting-Unit]L at OU6, a M[Ward-Based-Outreach-Team]List at OU7.
>
> There are standards and guidelines for implementing a MFL but we have
> 'extended circumstances' here in SA. We are looking at building a
> sophisticated solution using DHIS2 for each of the unique Hierarchy
> arrangements. We are also looking towards the Australian DD for hints on
> building an 'information services' type-of platform out of our hybrid
> MFL+DD. Unfortunately there are feelings that we will be replicating what
> is already available in the openHIE software suite or we may risk losing
> buy in.
>
> Anyone have info on standards for aggregated data? I'm fully comfortable
> driving ahead with these plans but derailment seems a possibility without a
> 'standards oriented' defense. There are also strong feelings that openHIE
> is a superior offering to our conceptual design (even though DHIS2 would be
> the underlying platform and data would continue to flow through
> transactional instances of DHIS2).
>
> Any ideas, comments or feedback?
>
> Greg
>
> ----- Forwarded message -----
> From: "Jason Pickering" <jason.p.pickering@xxxxxxxxx>
> To: "Greg Rowles" <greg.rowles@xxxxxxxxx>
> Subject: Standards for Aggregated Data Definitions (Element and
> Indicators) in Health
> Date: Wed, Apr 9, 2014 20:05
>
> Hi Greg,
>
> I think it is a very valid question and not something to be ashamed of at
> all. In terms of what WHO offers, you can check this out
>
> http://www.who.int/gho/indicator_registry/en/
>
> In addition, there are some internal HISP reccomendations (which I have
> heard of but never actually seen) in terms of how to create names of data
> elements and indicators. For instance, not using "Number of confirmed
> malaria cases" but rather "Confirmed malaria cases".
>
> I think in general though, there is a gap, and something which needs a lot
> more attention. HISP has been very focused on the technology, and less so
> on the semantics and M&E processes. I think Bob Joliffe and Ola though
> would have something to contribute here, so would encourage you to send
> this mail to the user/dev list for more feedback from the community.
>
> Cheers,
> Jason
>
>
>
> On Wed, Apr 9, 2014 at 7:01 PM, Greg Rowles <greg.rowles@xxxxxxxxx> wrote:
>
>> Hi Jason
>>
>> I'm a little embarrassed to copy in any other DHIS2 heavy-weights because
>> I might embarrass myself with this question:
>>
>> Do you know of any existing standards or guideliness on the development
>> of aggregated data-element and indicator definitions? Everything I find
>> points to patient-centric data definitions (ICD10, LOINC, SNOWMED). HL7
>> appears to be more about interoperability standards and not about
>> aggregation terminology.
>>
>> Aggregated data is required for reporting to WHO so I assume there are
>> standardization guidelines or existing codified definitions somewhere? If
>> not - there is a gap...?
>>
>>  Regards,
>> Greg
>>
>> --
>>
>> Business Intelligence Planner
>> *Health Information Systems Programme*
>> *- - - - - - - **- - - - - - - **- - - - - - - **- - - - - - - **- - - -
>> - *
>> Mobile  :    073 246 2992
>> Landline:   021 554 3130
>> Fax:          086 733 8432
>>  Skype:      gregory_rowles
>>
>
>


-- 

Business Intelligence Planner
*Health Information Systems Programme*
*- - - - - - - **- - - - - - - **- - - - - - - **- - - - - - - **- - - - - *
Mobile  :    073 246 2992
Landline:   021 554 3130
Fax:          086 733 8432
Skype:      gregory_rowles

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